Wednesday, April 1, 2009

Mercy Update 4/1/09

I don't have any photos today, but Mercy is looking great. Her face is almost totally flat now. Watching this thing go away is one of the most amazing things I have ever seen. To see it go down when we have watched it grow for two years just defies explanation. It is a wonderful sight.

Even the doctors were amazed... Dr. Adams walked in the room and said, "Oh Wow. She looks wonderful!" That's a big deal to me... even the doctors see the progress. They are cautiously optimistic. This is such an unknown... how long do we keep her on the propranalol? What dosage? What will happen when we take her off? Will it grow back? These are all things that no one knows, since it is a very new thing to use propranalol for this purpose.

For right now, the dosage question is answered by the fact that even on just 1 ml / kg Mercy's blood pressure is very low. Since we are seeing progress with this level, they are just going to leave her here. I will have to get her blood pressure taken on Friday, then again the end of next week. If it is lower we will have to do something else.

We are praying it stays the same or raises a bit, back to normal levels.

So that is all on our Mercy!!!

In other news on the farm, we are preparing our garden beds for planting the broccoli, cauliflower, cabbage, peas, lettuce, spinach, and strawberries. We also got 20 or so chicks today. I am sure photos will follow when I am not exhausted. Maybe in 20 years or so.

That was a joke. I think.


  1. Oh, Carri! I just BURST into tears of gratefulness!!!! Thank You, Lord!!!

    Pictures, please?

    Love you!

  2. We are thanking and Praising God with you Carrie! and will continue to pray...... What a blessing it is to lift each other up!


  3. Praise God! What a wonderful thing!

  4. God is good and his Mercy endures forever!!!! He is the God of all even Hemangiomas!!!! Mercy looks beautiful and she looks like SHE feels better!!!! I wish we could have come oever tonight! :( WE love you guys dearly!!!!! Love Char

  5. Great news on the progress! I love it when doctors are amazed and impressed. :)
    We will pray for Mercy's blood pressure to raise just a bit!

  6. Our family is continuing to pray for your sweet little one during our group prayer time in the morings. I'm so glad to hear she's doing so well and we can't wait to see pictures!


  7. Amazing, amazing, amazing. I can't wait to see some new pictures. Praise God for Mercy and His love for her! Lisa~

  8. What a blessing! I would love to see pictures too! Thanks for your advice. Now my new mri is going to be forwarded to the Stanford VA clinic!

  9. Can't wait to see photos...... :O)

  10. Can't wait to see photos.... :O)


  11. That is amazing. I feel blessed to have found your blog. My daughter has a comparatively small hemangioma on her cheek that we have struggled with emotionally. She is starting on the Propranolol today so we will see where that and God takes us. Thank you again for insightful entries and blessings!

    ` Ella's Dad